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Patient Advocacy Manager – Rare Disease

Patient Advocacy Manager – Rare Disease

Science and medical therapies are a truly magical thing. With the scope to enhance and transform lives, this vitally important field impacts on every single person in every single country. Our biotechnology client knows this all too well. As an industry leader, they take true pleasure in their work to devise advanced therapies that treat rare metabolic diseases. Developing medicines that have the scope to improve disease sufferers lives immeasurably, they put the patient at the heart of every decision, every thought process and every scientific breakthrough. The resulting atmosphere is one of determined optimism – their team are passionate about the work they are doing, and they enjoy knowing that their input is directly affecting the lives of not only patients, but their families too. Joining them is an intrinsically smart career move. With plenty of opportunities for travel both in Europe and further afield, they are on the cusp of their first U.S. commercial launch. As such, they have an international reach with big ambitions to grow and realise their fantastic potential – and it is here that they need your help.

The role:
Taking on the type of career-defining projects and challenges that are hard to come by, you will be at the heart of devising patient-related services and programmes on an international scale. Ensuring the patient remains at the core of the organisation’s work, you will therefore use your knockout communication skills to build relationships with those who are integral to the programme and lifecycle development. This will include everyone from patients and their families, to healthcare professionals and institutions that support those with diseases. Providing support and resources to the patient community, you will promote disease awareness, such as enhancing knowledge of clinical trials. You will also support educational activities, and represent the organisation at external events. With a dogged determination that will make you an essential part of this multi-layered team, you will coordinate internal patient advocacy work, championing cross-functional collaboration to achieve your goals – and take the capabilities of this dynamic organisation to the next level.

You’ll need:
• Spectacular interpersonal skills. With a flair for communicating complex scientific information to a variety of audiences, you’ll
make every presentation seem like a fascinating conversation.
• Impressive written skills, particularly as you’ll be contributing to educational materials and online content.
• Patient advocacy experience in a corporation, clinical research organisation, NGO or agency associated with the
biotech/pharmaceutical industry.
• To be smart – as evidenced by your degree-level education.
• To be super organised, with the ability to execute your strategies neatly.
• Experience of working in the field of rare diseases would be preferred.
• The willingness to travel for up to 50% of your working week. Which also means you’ll enjoy working with culturally diverse

If you think this sounds like something you’d be interested in please apply via this advert or send your CV to Emma at Thorp Associates – .
Due to the high level of applicants we receive, if you don’t hear back from us in the next 14 days, unfortunately you have been unsuccessful on this occasion.

Contact Details:
Thorp Associates
Tel: +44(0)1293 850 800
Contact: Emma Thorp

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